Validation
It's really invalidating to be told that "I know what it's like cause..." Insert family member or pet here. Unless you've actually lived through it you can't know what it's like. Hi, I'm CJ and I got diagnosed with a Paraganglioma in 2019. I'm not a Dr and I'm not giving medical advice. This is just my journey I've experienced. I had an "ear infection" for 6mo. They saw what appeared to be redness behind my ear drum. They referred me to an ENT. An ear nose and throat specialist. They took one look and confirmed it was a tumour. The ENT told me that it's really tiny. However they wanted to more testing done. The more images they did. The more they found, and the bigger it was. It was all over my head and neck. I had horrible vertigo around the time of diagnosis. It felt like I was drunk. The world was tilting. And no matter how hard I tried I couldn't walk straight. Eventually I would fall over. Vomiting cause of the in...